{"id":2798,"date":"2018-07-30T11:08:28","date_gmt":"2018-07-30T09:08:28","guid":{"rendered":"http:\/\/dev.fondationpierrefabre.org\/our-programmes\/combatting-sickle-cell-disease\/prevention-diagnostique-et-prise-en-charge-de-la-drepanocytose\/"},"modified":"2019-09-26T17:26:07","modified_gmt":"2019-09-26T15:26:07","slug":"prevention-diagnosis-treatment-sickle-cell-disease","status":"publish","type":"page","link":"https:\/\/sandbox.fondationpierrefabre.org\/en\/our-programmes\/combatting-sickle-cell-disease\/prevention-diagnosis-treatment-sickle-cell-disease\/","title":{"rendered":"Prevention, diagnosis and treatment of sickle cell disease"},"content":{"rendered":"

Prevention, diagnosis and treatment of sickle cell disease<\/h1>\n

\u2014 Burkina Faso \u2014<\/span><\/em><\/h3>\n<\/div>
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BACKGROUND<\/strong><\/span><\/p>\n<\/div>\n

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As one of the world\u2019s 10 least-developed countries, Burkina Faso has a record rate of sickle cell disease: 2% of newborns will suffer from major syndromes. Yet no national programme has been implemented to fight this scourge. As a result, most cases are discovered too late, based on complications from the disease.<\/strong><\/p>\n

In 2014, Fondation Pierre Fabre signed a partnership with the Comit\u00e9 d\u2019Initiative contre la Dr\u00e9panocytose au Burkina<\/em> (Sickle Cell Disease Initiative Committee in Burkina or CID\/B), a non-profit organisation that has been very active since 2006. Together, starting in 2015 and over a three-year period, they will implement a project of unprecedented magnitude in the country, built upon three objectives.<\/strong> The first objective is to raise awareness by creating a dedicated information centre (see above photo of an information session and screening). The second is to improve access to care by creating a pilot centre inside Saint Camille Hospital in Ouagadougou, the main activities of which will be doctor\u2019s visits, a day clinic and orthopaedic surgery. The last is to offer systematic neonatal diagnosis in the Saint Camille Hospital maternity ward. Because only screening done before the age of six months can effectively reduce the Sickle cell disease mortality rate. Biological analyses will be performed by the Haemoglobin Diagnostic Reference Laboratory at the University of Ouagadougou.<\/p>\n

For each of these objectives, the CID\/B manages the day-to-day tasks and administration and the Foundation provides logistical and financial support<\/strong>. It purchases items such as equipment and medical material for each structure, including the University\u2019s haematology laboratory. Based on its experience in other countries on the continent, it also advises the CID\/B on its communications initiatives and new partnerships.<\/p>\n<\/div>

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KEY FACTS<\/span><\/strong><\/span>
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Priority<\/strong><\/span>
\nCombating Sickle cell disease<\/span><\/p>\n

Programme<\/strong><\/span>
\n2014<\/span><\/p>\n

Type of involvement<\/strong><\/span>
\nDistributor and operator<\/span><\/p>\n

Actions<\/strong><\/span><\/p>\n

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  • Provides fully-equipped facilities at the Saint Camille Hospital (day clinic rooms and orthopaedic operating theatre).<\/span><\/li>\n
  • Supports the creation of an information centre to receive the public and provide genetic counselling.<\/span><\/li>\n
  • Provides the University with fully-equipped analysis laboratory facilities to begin neonatal screening.<\/span><\/li>\n<\/ul>\n<\/div>
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    Comit\u00e9 d\u2019Initiative contre la Dr\u00e9panocytose au Burkina (CID\/B)<\/strong><\/span>
    \n06 BP 9396 Ouagadougou 06<\/p>\n<\/div>

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