Improving management of noma
— Burkina Faso —
BACKGROUND
Noma, often associated with extreme poverty, is a gangrenous stomatitis that develops in the mouth and destroys the face’s soft and bone tissues. It is mainly caused by hygiene issues, malnutrition and immune deficiency related to infectious diseases. Nearly 100,000 people worldwide are affected by the malady each year, mostly children. Of these, only 20% survive: such deformation means they have trouble eating and breathing.
In 2000, anxious to put a face to these children, Dr Bellity carried out a first operation in Paris on Fati, a little girl from Burkina Faso. It was a success. However, seeing the separation trauma when time came for the girl to return to her home country, he decided that future operations would take place over there. Les Enfants du Noma (The Children of Noma) was born. This association arranges regular missions at the Maison de Fati, a local support facility for children and their carers. There, a total of 21 surgeons, 10 anaesthesiologists, four doctors and 37 nurses repair the disastrous effects of noma, but also address tumours, cleft lips and orthopaedic problems. Since the association was founded, its staff has treated 2,500 children.
In 2014, Fondation Pierre Fabre, well aware of the issues involved in tropical dermatology, decided to support Les Enfants du Noma. It will fund nine missions in Burkina Faso through 2017. It will also create a scholarship and professional development in maxillofacial surgery for local specialists. The fellows will be received in teaching hospitals in Saint-Etienne, Caen and Marseille, and Marseille’s army hospitals. Lastly, the Foundation will provide advocacy support by carrying out information campaigns on noma.
KEY FACTS
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Priority
Tropical dermatology
Programme
Since 2015
Type of involvement
Distributor and operator
Actions
- Scholarship (covering six months in France and on-site training during Les Enfants du Noma interventions)
- Supply of academic training textbooks
- Organisation of academic training presentations
- Funding for 9 annual missions of Les Enfants du Noma (including purchase of medicines and equipment)
- Information campaigns
Enfants du Noma
CHU Nord – Service de Chirurgie Maxillo-Faciale
Pr. Seguin
42055 Saint-Étienne CEDEX 2
Contact : secretariatedn@gmail.com
http://www.enfantsdunoma.info
Noma is a particularly devastating disease. The repair techniques used to treat its manifestations are sophisticated and often require several operations spaced over a number of months. This surgery cannot take place if there is not highly professional medical oversight. With the help of the Maison de Fati, Les Enfants du Noma has created a facility to receive and treat these children, so that they can benefit from the monitoring and care they need until the repairs are complete.”
Dr Philippe Bellity
Plastic surgeon, Founder and President of Les Enfants du Noma
Future initiatives
The partnership between Les Enfants du Noma and Fondation Pierre Fabre is expected to expand to encompass treatment of giant keloids, which are skin growths due to abnormal scarring. Furthermore, both parties are considering spreading their work to other countries.
See also
Creation of a national teledermatology service
Mali, faced with a regional dermatologist shortage, is assessing the feasibility of a telemedicine programme. Objectives: improve healthcare and create a true communications network.
31/07/2018See also
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Fondation Pierre Fabre supports the Comité d'Initiative contre la Drépanocytose (Sickle Cell Disease Initiative Committee) in Burkina to pursue a project of unprecedented scale in the country.
30/07/2018Follow our action
Fondation Pierre Fabre celebrated 20 years of commitment to healthcare in the Global South
Fondation Pierre Fabre celebrated 20 years of commitment to healthcare in the Global South 13/09/2019 The day brought together more than 300 leading figures from the scientific, medical, academic, humanitarian